PHOTO CREDIT: BANKSY’S ICONIC ‘GIRL WITH THE RED BALLOON’
Savannah Hope’s Journey
‘Savannah Hope’ has been diagnosed with Congenital Diaphragmatic Hernia, (CDH). CDH is a birth defect of the diaphragm. Essentially with CDH there is a hole in the diaphragm that allows organs from the diaphragm to move into the chest and thereby compromising critical lung development. CDH affects about one in every 2,500 live births per year. CDH is a life-threatening pathology in infants, and a major cause of death from pulmonary hypoplasia and pulmonary hypertension. She was diagnosed at 19 weeks during a routine ultrasound and genetics counseling session for down syndrome.
The severity of CDH is largely determined by the position of the liver and LHR, lung-to-head ratio. Baby Savannah has severe left CDH with a LHR reading below 1.0 and ‘liver-up;’ meaning her liver and contents of her abdomen are in her chest.
We will be sharing our journey through diagnosis, surgeries, delivery, and Savannah’s battle to survive after birth.
During the next 6 weeks we’ll be in the hands of several incredible doctors, angles as I like to call them, at the University of California, San Francisco Fetal Treatment Center. We will undergo in utero surgery called tracheal occlusion to help improve her lung development. We feel this is her best chance at life.
According to doctors, she has a 30% chance of survival. But, they could be wrong, right?! Miracles do happen everyday. Our baby girl has a long and hard road ahead of her. She has touched our lives and many others in incredible ways. No matter how long we have with her here, she is celebrated and loved.
We humbly ask for your prayers and positive thoughts. We’ve also created a Prayers For Savannah Hope Facebook Page to celebrate her through encouraging words, inspirational photos, and prayer. Please share your experiences as well. It’s wonderful to connect with others that have experienced hardship. Thank you for reading and joining us through our incredible journey. ♥
A Mother’s Letter (June 6)
Later Submissions Based On Progress (updating soon)
Delivery: Her First Breath
CDH Surgery After Birth: Closing The Hole
ECMO: Will She Need It?
My dearest friend Maytrella and her beautiful family have set up a Prayers for Savannah Hope Fundraiser. Words cannot express how humbled and grateful we are for your prayers and support. God bless!
Congenital Diaphragmatic Hernia, Wikipedia